Scott is here this week so he has accompanied me to chemo. He is reading the paper and I am obviously writing the blog. We just talked about how grateful we are that I can tolerate this chemo so well and that I can continue to get it as it continues to do it's thing. My CEA number when down again and that keeps everyone happy. I asked about how we decide how many more chemo sessions there are and Dr Dan said that at some point the numbers will plateau and then we would consider stopping. This is number 2 of my anticipated last 4-6 sessions. I asked about even doing 8 but I think he suspects a plateau will happen before that. My understanding is that 8 would be the limit. Everyone is still surprised as how well I tolerate the chemo, I just keep being very thankful.
The Gopher women basketball team is playing in the NIT tournament tonight so we are all headed there for evening entertainment. I with chemo in tow and a little tiredness from the day. But it should be fun and I can sleep late tomorrow morning. Scott found that Rachel Banham, our star is #10 on the NCAA all time scoring record so depending on how many games we play in the NIT she should be moving up that list. She has been fun to watch this year and we are hoping for a good game tonight. Post Game: Gophers won and it was the Rachel Banham show with Rachel scoring 48 points. Sunday is the next game. She is now the 6th all time NCAA woman's scorer, having passed Maya Moore, Cheryl Miller, Elena Delle Done, Chamique Holdsclaw.
Had a good two weeks. I am off Metformin pills (taking another pill and insulin instead) for my diabetes and my stomach ailments were less severe throughout the two weeks. I occasionally think it is funny that I had to get cancer to learn how to spell diarrhea--there is always something new to learn....We are still trying to navigate how to make plans during the first week when my mind is willing to be out and about and my body is stuck like glue to the couch. Sue is good about being sure we get out and do something, even if just a spin around the grocery store. Good weather is helping make outings easier and we enjoy Thursday through Tuesday which are near normal days, with a few tired moments or a nap.
So I have a head full of peach fuzz as I like to call it. I am anxious to dye it pink or blue but as I float that idea I am getting consensus that I may end up with pink or blue dyed skin. Not the look I am going for. Does anyone know of a non-permanent idea and/or one that will not turn my head colors. I may be out of luck but I think, "What's the use of having peach fuzz if no one can see it?" Sue tells me to let go of the idea and unless someone has a solution for me I will do so....
I got some new hats this week--winter caps from the Daytona Bike Week and cool winter hats with blue tooth speakers in them courtesy of Leonard and Dorothy. I may try the blue tooth today, keep my head warm and listen to music and sleep all at once. Sounds like good after lunch behavior. Edie sent a puzzle book which is a nice distraction. I finished my pencil jig-saw puzzle and waited for Scott to come before starting another. We are doing one from Zion National Park. I collect pins and puzzles when we go to parks.
We have reserved 3 nights at Yosemite in May, a few weeks after the 6th chemo session. Our friends Deb and Jim will join us. We are trying to figure out what else to do between there and San Fran for a few more days to make it about a week long trip. We will fly in and out of SF and drive to Yosemite and where ever else we pick--suggestions? And the big news, we are booking a trip to Japan. We found an Africa trip that was oh so tempting, a repeat of 2014 trip and we almost set on that. We both hesitated and asked Dr Dan. He said either trip was fine we just needed to have access to reasonable health care if needed. So we could get that in either place but it just feels easier in Japan. We found an itinerary we like with Alexander and Roberts with a group size of 16. https://www.alexanderroberts.com/destination/asia/from-japans-inland-sea-to-the-alps-(1).aspx
I am getting more and more excited about it now that the decision is made and we can be anticipating the trip. I would not have imagined this past October that we would be planning another trip and it does not escape me that it is 4 months away and I am confident that we will be able to go. And grateful.
We had a good two weeks: Jerusalem at the Science Museum in IMAX. Beautiful scenery and story through the eyes/lives of three young woman. And we learned some new info, which is now forgotten. Glad we went. We took the cast and crew of the Allergist's Wife (the play we produced) some wine to say thank you. It was great fun to see them and to tell them how much we marveled at the transformation from the first reading to the show. Hugs all around and a few pictures and they were off to prep for the show. We stayed to see the first act again and enjoy all the laughs and somehow or other heard a few new lines, can't figure that out...We enjoyed dinner before this with Phyllis and Mary Margaret. Always good to see them and catch up on family, doings at MM's work and of course to do a little political conversation. Fun night. Had some hints of Spring, pulled out a few chairs on the deck and though you can't see her, Jessie cat loves to hang out there with us--it was70 degrees!
Sunday we saw Gypsy at Theater Latte Da, another local theater with outstanding performances. The role of Rose, the mom, was played by an incredible actress very well suited to the role, her voice filled the theater. We went to see "The Lady in the Van" with Maggie Smith. Great movie. Our friend Sylvia recommended it and boy was she right. Also attended a members only night for the Lynx, toured the practice facilities and locker in the new Mayo Clinic sports center. Cheryl Reeve, the coach, spoke about the team, the future, the players new and old. She always talks about them working as a team and the culture of the team that new players want to join and work hard to do so.
Nancy had lunch with Mark from Hamline and he invited Veena along so it was a great catch up time. Errands, continued paperwork and purging on the other days. We always appreciate the 3-4 non tired days that come pre chemo.
I have discovered that harder then the chemo day, which is long and boring, is the chemo home infusion. It makes eating tasteless and just makes my body feel funny for two days as more chemicals drip in. I go in Friday afternoon to get it disconnected from my port and then I crash. And I receive my very special $6000 injection--Neulasta to boost my immune system and helps to reduce the risk of infection. Couldn't believe my eyes when I saw the cost. You can see ads for it on tv, but they don't mention the cost.
Special treat this week was the arrival of a "Super Luke" jar. When he was 6 and and diagnosed with leukemia he took to drawing and they transferred a drawing to a jar. He recently celebrated his last chemo, is cancer free and has been one of my inspirations since my journey began. The jar is going to be my Random Acts of kindness jar. I will either fill it with names and draw one, or pick a name and write it down to put in the jar once I send an email or make a call or...
Chemo day seems to be a good day to write so look for an update in two weeks... Happy St Patrick's day.
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