Life is getting pretty routine, with a few quirks along the way. Chemo makes for strange eating habits. The other morning it was mac and cheese with hot chocolate for breakfast. I could probably go on a mac and cheese diet for a while but am trying to get a variety of foods in. I can eat something at lunchtime and at dinner it doesn't taste good, same happens with drinks. It is all weird. Mac and cheese for lunch today-worked perfectly.
We went to a basketball game the other night with Mary and Co, the night after chemo so my cold sensitivity was high. Sue dropped me off and picked me up as close as possible to the door but by the time I got to the car the cold had gotten into my eyes. We spent the car ride home thinking of ways to keep my eyes covered. Ski mask, scuba mask, swim goggles. We kept coming back to the scuba mask and periodically scuba sound effects could be heard from the back seat. Lots of good laughter.
Friends Nancy and Liz came out from Connecticut for a few days. Nancy is a colon cancer survivor so they know the drill. They were anxious to have a walleye dinner so we went to Tavern on Grand for dinner. We left them home on chemo day and around 11:00 got a text--"we found the other candy and cookie drawer!" They seemed to do fine on their own. The big snow came on Tuesday, Sue and I tried to go to a doc and lab appointment but turned around and went to the lab close to home and talked to the doc by phone--she was sitting in the dark at her clinic where the power was out--good thing we didn't try to get there. We had planned to go to the movies but rented the Bridge of Spies instead and had a cozy night in. It was a nice visit and they were very comfortable being here and going with the flow and non flow of chemo days. Thanks for good company, conversation,
laughs and hugs.
Sue says the big world news this week is Brett Farve getting into the hall of fame. Superbowl Sunday is upon us. We have a neighborhood open house this afternoon to say goodbye to neighbors moving to Denver. Then Mary and Co will come over for stir fry and Superbowl watching. Snow may be on it's way, we will wait to see.
The doc says I do not look like a patient on Fulfirinox. It can be a pretty toxic chemo and I am so far being spared the worst of it. Prickly fingers and cold sensitivity are the worst for me and steroid ups and downs are confusing. A little more tired, but I said that last time and then recovered. Chemo took 5 hours this time, I slept for about 3 hours. Sue came armed with pillows to make her chair more comfortable, I don't think it worked. She watches videos, makes my future appointments, feeds me lunch, plays solitaire and sympathizes with me. The doc says there is no correlation between the toxicity of the chemo side effects and it's ability to do it's work. I am keeping all my positive forces engaged to help the chemo do it's thing.
We have a few lunches planned for this week, maybe a visit to tech week for our play--depending on the weather. My family arrives Friday, there will be 14 of us here, only 4 will stay at the house. Looking forward to a fun valentines day weekend. And speaking of Valentines Day a bit early, it is a day about love. I send you all special love--you have kept me in your thoughts and prayers, sent hugs, pictures, emails and texts. I can feel the energy of friends and family as we navigate this journey. In return, I send you my love, hugs and good positive energy as you navigate your journey.
Nancy,
ReplyDeleteWish we could enjoy the Superbowl with you and Sue! You are in our thoughts, we send you warm, sunny wishes.
Marilyn, Ava and Maggie
I just got caught up on the blog. Thank you so much for sharing your experience and your progress. You know, when I was little I always saw you as two strong women and always hoped I could be as strong as you two! You continue to show your strength every day. I love you both so much, you have taught and inspired me Kore than you could ever know.
ReplyDeleteMy thoughts are with you two every day. I think of you every day. I send positive vibes every day. I can't imagine what this must be like...it breaks my heart that such good people can get dealt a poor hand. I hope I can see you guys soon. My son needs to meet you and he needs to know you both!! Lots of love and good vibes coming your way.
If you have not yet, please read the book The Secret. It is beyond powerful!
Sue and Nancy
ReplyDeleteSue / Nancy
Just a quick note that I'm praying you.
Had a nice visit with Kenn in Toronto and another with John Thompson.
Your names always come up. Know you have support up north, and I know you do
Cheers
Russ Di Sam Ari Ryan Moses